The eyes play a vital role in our ability to move about the world. When something happens to the eyes, it tends to impact the rest of the body. Progressive Supranuclear Palsy or PSP is a brain disorder that impacts the movement of the eyes and subsequently impairs movement, balance, speech, swallowing, behavior. Death can come years or even decades after diagnosis.
There is no clear-cut cause of PSP but heredity and a gene mutation are currently thought to be the causes in some cases. The most common cause of death for PSP patients is pneumonia since PSP makes people more prone to getting it.
Common symptoms of PSP include blurred vision, problems voluntarily moving the eyes, not being able to look in another’s eyes, problems speaking, falling more often, difficulty maintaining balance or walking, being unable to move muscles in the face. A personaffected by progressive supranuclear palsy moves more stiffly than usual and has prolonged bouts of laughter or crying.
As the disease progresses, patients have trouble swallowing, have trouble concentrating, move more slowly, can no longer solve even simple problems. Depression and loss of empathy for others might occur, making them appear cold and selfish. Ideally, a caretaker or loved one should handle a PSP patient’s finances.
There is no cure for progressive supranuclear palsy. However, there are things patients and their caretakers can do to make life safer and easier. Using canes, walkers or rollators helps stabilize a patient when walking. Installing grab bars in doorways, stairways, toilets, bathtubs and shower stalls also helps patients keep balance.
Prism glasses or bifocals help some patients. If patients can no longer feed themselves or continually choke on food, they may need a stomach tube surgically implanted in them. Medications for Parkinson’s disease may be prescribed to help with balance and coordination. Antidepressants help combat the depression and anxiety that patients may have because of PSP. Going to a speech therapist may help with problems talking or communicating.
Talk to a neurologist or doctor about any national or local clinical trials for PSP that may be going on that the patient can participate in.